Happy Friday to all this Holloween weekend. I had so many things to do yesterday that time got away from me. So this morning, since I have a terrible headache and I am waiting for my meds to start working, I thought I would post a couple of things that I have noticed about my syndrome.
1. Can't multitask like I used to. This wouldn't be so bad, if I didn't ever have anything to do, however, since I have 3 growing girls, a wonderful husband, and prefer to eat at home every night then things would be different. Not to mention the every breeding laundry pile. I can no longer hear the needs of my daughters, comprehend and put into order the way they need to be answered, without having to ask them again and again, what was it that you needed. Dinner is a whole issue in itself. Three pans going last night 'bout ran me into the ground. Crazy.

2. Mornings are by far the best for me. Once noon hits, it is nothing but downhill from there. Heaven forbid I try to do something like go shopping with my sister or something in the am, then I am whoooooooooooppppppped for sure.

This may seem trivial to some but it is very humbling to say the least, as well as frustrating compared to the way things use to be. I know I shouldn't look back, but it is difficult when the girls and I were so active, now reduced to nothing it seems. My how 1 thing can change your life forever.

Hope you all have a wonderful day/weekend.

I haven't posted for 2 days, but today was better. Rested and did a few things. I am finding that things are more tolerable if I go out of the house. Amazing how that works. Didn't eat a whole lot today, maybe because I don't feel hungry when I feel bad. Love the weather, although I am not wearing enough clothing to keep me warm, gotta do that tomorrow for sure. Hope you all are having a blessed week.

Blue Monday

So I wanted to post something earlier, because I was feeling a little normal. So as the day progressed so did my pain, more achiness today, than localized pain. So much so that I actually broke down in front my husband and girls. This is not very normal for me. I am the type that hides the severe pain from my family, as I would prefer to shield them from what I can. That being said, my children do know that I have this syndrome, they are aware of pain, as to what extent that is where I hide it. No it is not fair, but life is not fair. These are the cards that I and my family have been dealt. What we choose to do with it, that will make us stronger and more of a conquerer. Thank goodness tomorrow is a new day. Hopefully it will be better.

Beautiful Sunday

Feeling more like a real person today. I am feeling very alert today, almost detox like. WEIRD, but good for sure. Thinking it is very easy to become over-medicated, even though I am following doctors orders. I will continue to fight today as it is beautiful outside, it is Sunday, it is fall, I am alive, and we have softball game today that I am going to go to.
I have missed the last few as I very ill and then Victoria has been sick. I think that really affects the girls when I am not there to support them. I do feel guilty when I don't go to a practice/game. I feel sad as well, and alot of anxiety too. My mind is there, but I can't get my body to move. It is a very frustrating angry feeling. I feel trapped most days. Confined, stuck. Today I will enjoy. It is one of the few that I can, so make the best of today.

Oh this is crazy

Today has been pretty rough, spent most of the day unfortunately in bed. Sometimes I wonder, why??? I feel emotional about the fact that I can't do all the things I want to with my children and husband. And I feel sometimes as I am sleeping my life away. Crazy I know, but that is how I feel. I wish I did have the flu, so I can get over it and move on. I feel that sometimes it is in my head, but then someone will touch a sensative area and I nearly jump through the roof. That is when I realize that the pain is real, and it is a real problem. I am saddened as I sit here in the dark of my room, knowing that my husband and children are at the park having great times together and I am here to wallow in my own pain. Even the dog is in the other room....lol I guess that is all for now...will write more later.